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New Privacy Agreement Marks Historic Moment In Bioethics

Publication Date: 
August 08, 2013
Source: 
KQED News
Author: 
Stephanie Martin

Professor Hank Greely spoke with KQED's Stephanie Martin about the Henrietta Lacks case and answered questions about whether Lacks' descendents deserve compensation for the fruits future studies. 

The new privacy agreement between the family of Henrietta Lacks and the National Institutes of Health marks a historic moment in the field of bioethics -- but it still leaves many thorny questions unresolved.

When the 31-year-old Lacks died of cervical cancer more than 60 years ago, scientists removed some of her tumor cells for research. Since that time they've been shipped around the globe and used in thousands of studies. The problem is that she and her family were never asked permission.

...

Host Stephanie Martin discusses the case with Hank Greely, the director of the Center for Law and the Biosciences at Stanford University and the Deane F. and Kate Edelman Johnson Professor of Law.